Adalia Rose Williams, a popular social media figure with premature aging, passed away this January 12 at age 15. The news was released this Thursday by his family on social networks, without specifying the specific causes of his death.
“[Adalia] he left quietly, but his life was far from that. She touched millions of people and left a huge mark on everyone who knew her. She is no longer in pain and now she is dancing to all the music she likes,” says the message, which also thanks all the medical staff who worked with her “for years to keep her healthy.”
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This adolescent from Texas (USA) was diagnosed at three months of age with the Hutchinson-Gilford progeria syndrome, a rare genetic condition that causes children to develop many changes and diseases such as hair loss, skin aging, joint abnormalities or bone loss. The life expectancy of these people is 13 years and it affects less than 500 children worldwide.
Despite her short life, with her outgoing personality, Adalia managed to become an Internet star, where she used to share bits of her daily life and her taste for everything related to fashion. He was also shown singing, dancing and having fun, despite his health mishaps. On Facebook he accumulated 12 million followers, and YouTube 2.9 million subscribers and on Instagram she was followed by more than 400,000 people.
Her mother, Natalia Pallante, said in an interview in 2018 that after being diagnosed with the disease, Adalia began to lose her hair and her skin became thinner. The family always tried not to talk about life expectancy with their daughter so as not to fill her with fear and always they struggled to live from day to day.
“We don’t even say the word ‘progeria’ very often, we just we treat her like a normal girl 11 years old and we try to give him the best life,” his father, Ryan, said at the time.