Interstitial cystitis is a chronic condition that causes bladder pressure and pain, and sometimes pelvic pain as well. This ailment is part of a spectrum of conditions known as “painful bladder syndrome”.
The bladder is a hollow, muscular organ that stores urine. This organ expands until it is full, and then signals the brain through the pelvic nerves that it is time to urinate. With the interstitial cystitis, these signals are mixed and, as explained by specialists from the Mayo Clinic in the United States, “the need to urinate is felt more frequently and with smaller urine volumes than most people.”
Most of the time, interstitial cystitis affects women, while in men, similar symptoms may appear, but they are usually associated with inflammation of the prostate gland (prostatitis). This disease can have a long-lasting impact on quality of life, and while there is no cure, medications and other therapies can offer relief.
Symptoms of interstitial cystitis
Signs and symptoms of interstitial cystitis vary according to each personalthough they can also vary over time and appear from time to time in response to common triggers such as menstruation, prolonged sitting, stress, exercise and sexual activity.
- Pain in the pelvis or between the vagina and the anus in the women.
- Pain between the scrotum and the anus in men (perineum).
- Chronic pelvic pain.
- Urgent and persistent need for to pee.
- Frequent urination, often in small amounts, during the day and night (up to 60 times a day).
- pain or discomfort while filling the bladder and relief after urination.
- pain during sexual relations.
Interstitial Cystitis Complications
- Reduction in bladder capacity. Interstitial cystitis can cause the bladder wall to harden, which means that the bladder holds less urine.
- Poor quality of life. Pain and frequent urination can interfere with social activities, work, and other activities of daily living.
- Problems in sexual intimacy. Pain and frequent urination can hinder personal relationships and also sexual intimacy.
- Emotional problems. Chronic pain and interrupted sleep related to interstitial cystitis can cause emotional stress and lead to depression.
Adriana Smolinski, 29, revealed that she was discovered with interstitial cystitis after performing a biopsy because she suffered a lot of pain and commented: “They start in the legs, go through the pelvic part, back, kidney and urethra. It is an intolerable pain: I even took morphine to calm it down”.
The woman commented that she meets psychiatric treatment to be able to assimilate the disease and that, as a consequence of it, he had to stop working because his body “cannot withstand standing for so long or sitting for so long.” He also indicated: “I have to lie down most of the time, because I can’t stand the pain, and I urinate every two minutes. I came to urinate more than 100 times in one day.
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After being left without a job and without social work, he must cover the expenses of a study that must be carried out and also make a treatment with a medication from Spain. For this reason, he carries out a campaign to raise the 4,500,000 pesos that he needs, while his idea is also to set up a foundation that protects the disease and raise awareness about this disease.
Smolinski left his data for those who can collaborate: CVU: 0000003100036406967045, Alias adriana.smo.mp.